A group of parents are advocating for greater preventative screening measures to minimize the occurrence of a rare yet deadly brain disease.
ALD is a genetic brain disorder that often impacts boys between the ages of 4 and 10.
Because of its rapidly progressive stages, the majority cannot receive treatment by the time they are diagnosed, causing many to die before they become teenagers.
Health advocates are calling for more genetic testing and blood tests to diagnose and treat the disease while in its early stages.
Bone marrow transplants are the most commonly used method to help combat ALD, but the procedure can often be life-threatening.
Read Full Story: NPR